Helping Duchenne Families find hope, support, and community
The Bafus Family Hope Foundation walks alongside families affected by Duchenne muscular dystrophy—providing financial travel assistance, trusted education shared through our family-led advocacy platform, and community support so no family faces this journey alone.
Our mission is personal.
Our Story
The Bafus Family Hope Foundation was created from lived experience.
As parents of two sons diagnosed with Duchenne muscular dystrophy, we understand the emotional, financial, and logistical weight this diagnosis carries. We have experienced long hospital stays, out-of-state travel for specialized care, and the life-changing impact of attending medical, family, and advocacy conferences that provide critical education and connection.
We also understand how quickly travel costs, lodging, registration fees, and missed work can become overwhelming.
This foundation was created to bridge that gap—ensuring families can access critical conferences, medical support, and community without financial hardship standing in the way.
WHY THIS MATTERS
Every year, Duchenne families face overwhelming travel costs to attend critical medical, family, and advocacy conferences. These events provide life-changing education, access to specialists, and connection with other families walking the same journey.
Without financial support, many families are forced to miss these opportunities.
Your support helps ensure no family has to choose between financial stability and access to critical care, education, and community.
HOW WE HELP
• Financial travel assistance for medical, family, and advocacy conferences
• Support for lodging, flight and conference registration expenses
• Trusted education shared through our family-led advocacy platform
• Meaningful community connection for Duchenne families
Apply for Travel Support
If your family is navigating Duchenne and are hoping to attend a medical, family, or advocacy conference, we understand how important those opportunities are and how hard they can be to access. Duchenne brings enough weight on its own, and we hope to lift a small part of that burden by helping families get there.
How it works
Submit the short application form.
Our board reviews each request based on need and available funding.
Approved families are contacted with next steps and support details.
OUR COMMITMENT TO TRANSPARENCY
The Bafus Family Hope Foundation is an IRS-approved 501(c)(3) nonprofit organization. We are committed to responsible stewardship, financial transparency, and ensuring donations directly support Duchenne families.
In addition to direct financial assistance, we provide trusted, experience-based education through our family-led advocacy and media platform—offering free, accessible resources to help families navigate diagnosis, treatment decisions, and community support with clarity and confidence.
We are dedicated to operating with integrity, accountability, and compassion in everything we do.
For our family, attending our first Duchenne conference changed everything. It was a gift from our parents—one that connected us to specialists, advocacy leaders, and a community that reshaped how we navigated this journey.
But many families never get that opportunity.
The cost of travel, lodging, and registration often forces families to miss out on life-changing access to education and support.
Your donation helps remove those barriers, ensuring more families can experience the clarity, connection, and hope that once changed everything for us.
HELP A FAMILY ATTEND THE NEXT CONFERENCE
The Bafus Family Hope Foundation is a registered 501(c)(3) non profit organization. Donations are tax-deductible as allowed by law.